Friday, November 05, 2010

No dialysis

We had an interesting conversation at lunch today. Hubby informed me that he will refuse dialysis when the time comes. He considers it "life support". He has a DNR. So I can sort of understand where he is coming from.

He was quite depressed. Says he is not going to have the back surgery. Is going to just live with the pain. I have been doing a lot of research and if he doesn't do the surgery, I think he will soon be a hunched over man. I suppose it can't hurt a lot to wait a few months, but I do worry about what will happen in the interim. I think it's the cortisone injection doing the talking right now. He had the injection 2 weeks ago and this one took, so he's getting a lot of relief from his pain. When it wears of, it may be a different story.

But I can also understand him not wanting to go through a major surgery just 8 months after open heart surgery. He is still trying to get the incision on his leg to heal. We went to wound care again today and they are not happy with the lack of progress, so have changed the protocal a 3rd time and we return in 2 weeks.

Hubby made the comment that he wished all his money wasn't going for medical care and I have to agree. Co-pay for office visits runs about $500 per month, prescriptions are running around $250 per month. That doesn't count larger co-pays for non-formulary items. I'm ever so grateful that we have the money now, but I wonder how long. And can he ever retire with these amounts of medical expenses? Probably not.

The idea of not doing dialysis scares me to death as I will then have to watch him die slowly.

And I wonder if by then the medical profession will have the power to force him to do something he doesn't want to do.

Such a horrible disease.


1 comment:

Lynn Barry said...

Sounds like he is worn out. Can't be easy for you to deal with. I have always gathered strength from the Serenity Prayer. change what you can change, accept what you cann not change and wisdom to know the difference. that's all I've got...and a hug. Good luck, my friend.