I know you asked a while ago about dialysis, how you know when it's time. Basically he sleeps a lot, watches TV and falls asleep. He would says he is not feeling well. He could not explain it. It's the kidney that is not able to eliminate the fluids and the toxins. I am fortunate that the nephrologist is talking to me and I asked what if he refuses to go on dialysis; she said he will die. I asked what type of death is that; she said he will go to sleep and never wake up, no pain. He also had few episodes of diabetic coma, and they were there because the kidney will not eliminate the insulin. At least I could see them coming and gave him glucose and OJ. Those episodes scared him a lot. He did not have any after he started dialysis, but there are other issues: eating, sleeping (they can't sleep through the night), restricted drinking and all the other extra pills (vitamins that the machine depletes the body off, anemia - iron that they give him via the dialysis, potassium that gets high). He drives himself, which is good. However, his driving is as bad as you all have shared with us. When I told him is the diabetes, he laughed at me. Lately I refuse to go if I do not drive. Your blog has helped me a lot, understand some consequences of the disease (driving, anger, incontinence). Thank you all and you specially DW (as I read all your blog),
Ady, thanks for your insight. I'm sure my hubby is just a step away from needing dialysis. In fact, he might be in need of it - who knows since he hasn't been to see his doctor in forever.
He sleeps all the time.
He comes downstairs, sits down on the sofa, turns the TV on, and falls asleep.
At 10 am in the morning! At 6 pm at night....ok, at any time of the day.
He usually goes to sleep about 10 pm and sleeps til 8 or 9 am.
He gets absolutely no exercise other than going up and down the stairs twice a day. Sometimes only once. And if we go out to eat, then he has to walk. The rest of the day he is either in bed, in his office in the chair, or on the sofa.
I know that the last time he went to the doc, his kidney function was at 22%.
He has probably put on 20 pounds in the last year. I know it's because the waste is going inward, no exercise, and he does eat all the time.
Personally, I imagine he will have a heart attack first.
He has been getting optical migrains where he sees nothing but bright white. So far, his vision returns. I just wonder how long before it doesn't return.
If I'm in the car, I drive.
And, as an example, today he has had:
a can of clam chowder
turkey sandwich and fries from Chilis
ham, egg and cheese bagel
chocolate dove candy
ham egg and cheese sandwich
Not an ounce of nutrition in there, huh?
On and upbeat note. I spent today and yesterday teaching art techniques to a wonderful gal who flew here to attend my class. It is a great confidence booster to know that I'm ok. Ok enough that someone else would fly in to learn from me. So it does help to have something else in your life that is "greater" than the diabetes, something else to focus on, worry about, stress over. I think it's the best thing I ever did. So, for the past 48 hours, I've escaped once again into my "other" world. It's something everyone should do.
the therapist I spoke with said this....
you need to find a goal in your life. That can be to get a job, to get a career, to volunteer, to have a hobby, to work for a cause. The goal is to get you something else to focus on. Something that you can devote your attention to. That way the diabetes isn't the only thing in your life.
Really good advice, huh?
But know that it took me 5 whole, long, endless years to agree with her and get myself to where I am today.
And it doesn't mean that I don't check every morning to see if he is still breathing. Or that when he falls asleep on the sofa - I don't worry about if he will be able to wake up....or is he in a coma?
It just puts something else in my life for me to think about as well. And that helps!