Saturday, May 09, 2015

Since my last post in February, I have come home, gone on a month long vacation with my sisters, gone back and spent 3 weeks with hubby and now we are both home for 3 weeks as he needs a break from taking care of his dad.  Until yesterday, things had gone great.  The plans are to spend a couple more weeks here, then go back to his dad's where I will spend a couple of weeks, then I'll head home for the summer.

What happened yesterday.  For the past few days, there have been horrible smells coming from his room whenever he opens the door.  I assumed it was our aging dog.  So I started on a mission with the black light to find where she had peed on the carpet.  I set out a can of freshener stuff, sprayed other products on the carpet....things I have done forever in the past.  In the back of my mind I kept thinking that this was not the smell of dog urine, but something I had experienced before and I was truly puzzled.

Last night, the smell was so bad I wanted to vomit.  So I asked hubby if he knew what it could be.  I told him it was making me sick and that today I would get a rug doctor and clean the carpets.  Me- still thinking it was our dog.

A couple of hours later, he comes into my bedroom and says, "the smells are all me.  I will pack up and drive back to dad's tomorrow and figure out how to get your car back to you."  I said, "what do you mean the smells are all you?"  (I was truly shocked by his statement as that thought had never crossed my mind!)  He said, I ate cheese and it is not agreeing with me.  You said that I am making you sick, so I will leave.

I almost wanted to burst out laughing.....or scream my head off.  Nowhere had I EVER said (or even thought) that "he" was making me sick.  I thought it was the dog!  And then is martyrdom....oh my goodness....that he is going to pack up, drive back to his dad's, leave me here without a vehicle....

I said, "stop being such a martyr!"  To which he stomped off to his room!  OK, isn't martyr the right term?  I found this definition online:  someone who is making a big deal out of their own work or suffering.

Again, I thought it was the dog!

And then my brain kicks in.  Remember - he's been gone for almost 3 years and I haven't had to deal with anything diabetic.....ketoacidosis.  That's the smell.  He had it horrible after his back surgery when his kidneys failed and he was on dialysis, and it's the very same smell.  Kidney failure.  And with all the neuropathy, he probably doesn't smell it at all.  If you haven't experienced it - it's a sweet acidic type smell and when it gets bad, it's nauseating.  

He's still in bed and I'm sure when he does wake up, he will be all apologetic and tell me how sorry he is and then he will do things to eliminate the odor.  It's always the pattern.  If it's anything different, I will post again.  But my memory recall is flooding back and I realize what an amazing gift I've had to be free of these "temper tantrums" - ok, highs and lows - for the last 3 years.  That being said, I also am fully aware of how exhausted he is from taking care of his father who is also a diabetic.

I may be a horrible person, but I'm going to say it again - this is NOT my disease.  Yet a diabetic produces all these side effects that a spouse must deal with.  ESRD is not pretty.  It is not pleasant.  I don't care how much you love a person, ketoacidosis is rank and can make you puke!  Well, at least make you dry heave which is also not pleasant!  The fact that he can't smell it is shocking.

Going to relax a bit before the "day" begins!


Desperate said...

Just found this blog and I wish I found it sooner. I need to do something like this. My husband's is a type 2 diabetic for 20 years now - non compliant. He had lost both legs and still won't take care of himself. We have 2 girls together. There are times I think about leaving him. I feel like I am just waiting for him to die. That sounds horrible but I know it's just a matter of time. I know my life would be so much better without him but I can't bring myself to do anything about it. I do love him and I try my hardest to be good to him. I am drained physically emotionally and financially. I have nothing to be excited about when I wake up each day. I force myself to get out of bed because I have no one to count on to do anything to help me. I am more depressed than anyone realizes. I actually hate my life. I need to change something but I don't know how.

Managing said...

I know exactly how you feel. And this blog illustrates to me just how long a non-compliant diabetic's chronic decline can affect their loved one's lives. It seems endless, and with no hope for getting better. Only a promise of years to come with losses and horrible physical and mental problems to contend with.
Having your own life aside from that horror is key to maintaining your sanity and health through the duration of this event in your life.
The option is to leave.
So if you decide to be there for your loved one, you must take care of yourself first. Even if it sounds selfish.
Put your oxygen mask on first - THEN help your neighbor. - get it ?!
That means find something to do in your life that you love. Do it every day if you need to. Protect your self.
A friend put it this way: Don't let your life get stuck iin the axle of their illness.
We are all separate to some degree, even when healthy and happy. Realize that. Don't feel guilty about it.