Creatinine level is 2.4

He looked it up online today and shared that with me at breakfast. So I simply started asking questions. What do you think that means? Do you think this is why your feet are so bad? Do you think they might delay the surgery? Do you think changing your insulin shots has any baring on this?

Normal conversation going on at breakfast. He said he was tired of taking 3 shots a day and was only going to take 2. So I quietly asked him why was he taking them at 6 am and 10 pm, not 6 am and 6 pm like he used to do and he said because it's what was easy to do.

Now, I know I was pushing and I still don't for one second think this is what his doctor has ordered him to do, but he claimed it was, so I said, "I sure wish I could just quit taking my pills because I think that's what would be easiest for me!" (He knows that I have a severe gag reaction and will often vomit just from taking a few vitamins.) And he says, "You have done that." And I said, "Only after discussing it with my doctor and getting their approval." And he said, "this is a STUPID argument...just drop it!"

Well, I did not think it was an argument at all.....but more confirmation that his doctors do not know he has changed his insulin. Because there's no other reason this suddenly became a "stupid argument" except I he knows he is not telling me the truth. It just makes no sense to me that they would make a change when all was going so smoothly....and here we are back to our daily arguments, confrontations, heated discussions.

And yes, I still chant in my brain "I have 2 choices....stay or leave". Well, today, I'm thinking more and more than I'll be packing my bags and moving on in a few weeks/months because I just am not going to put up with this change in his behaviour.

So anyway.....we got back after breakfast and I've been doing some research and found some interesting websites that I rather like.

This one talked about creatinine levels and using a GFR calculator:

http://kidney.niddk.nih.gov/kudiseases/pubs/yourkidneys/

This one provides a GFR calculator:

http://www.kidney.org/professionals/KLS/gfr_calculator.cfm


So here's where my hubby is:

Stage 4: Severe reduction in GFR (15 to 29). Continue following the treatment for complications of CKD and learn as much as you can about the treatments for kidney failure. Each treatment requires preparation. If you choose hemodialysis, you will need to have a procedure to make a vein in your arm larger and stronger for repeated needle insertions. For peritoneal dialysis, you will need to have a catheter placed in your abdomen. Or you may want to ask family or friends to consider donating a kidney for transplantation.

I don't think his health care will do anything until he gets a GFR of 15.

He did call his doctor's office when we got back here and they ordered new labs for him. Of course, I spent 2 hours on the phone making arrangements to have them done where we are since we are not at home and insurance has to be pre-notified for out-of-area services. (I'm totally thinking we are not going to move because it is just going to be more work that it's worth!!!)

Don't tell me this disease doesn't impact the spouse! That's TWO hours out of my life taking care of the administrative end of this for him. No, he couldn't do it, he's working "on the clock" today and doesn't have time to make all those calls.


We will go get the labs done this afternoon and then I think he should have the results by Thursday. Well, there is a chance the reading is a fluke, but I'm thinking with all the other symptoms/changes we have gone through lately, there is something major going on in his body at this time.

http://www.medscape.com/viewarticle/533695_5

an interesting website stating that at stage 4, 45.7% will die within 5 years. 19.9% will be on RRT within 5 years. With an even higher chance of death from heart related problems.

And did I remember to note that he did NOT bring his glucose meter with him on this trip? We are gone for 10 days and no ability to test his blood sugars. I just think this is even more indication that he remains in denial as to how serious his kidney disease is.